- Anyone else see the F-16s flying overhead a few minutes ago? #HoCo 23 hours ago
- RT @editti22: This is all your fault, Josh Hader. 4 days ago
- Making friends! #littleventures #fallfun @ Clark's Elioak Farm instagram.com/p/B3lQweMjDXq/… 6 days ago
- If you are going to the theatre, you might as well sit right up front. #datenight #latergram… twitter.com/i/web/status/1… 1 week ago
- Remember when Nate McLouth hit the foul pole in NY in the postseason but not was called foul instead of a homer? #orioles 1 week ago
- “That’s great hustle by Garcia” might be the worst comment in this whole thing. twitter.com/mlb/status/118… 1 week ago
- Just over here on Oct 5th still getting fresh tomatoes and peppers from the garden. #FarmerZack instagram.com/p/B3S_c8uDhv6/… 1 week ago
- #Millennials twitter.com/barstoolsports… 1 week ago
- Come on Ryu. 👎🏼 1 week ago
a collection of random thoughts and ideas from me, her, and sometimes us
Monthly Archives: December 2015
December 16, 2015Posted by on
To get released from the NICU, BBA had to make it six hours without his blood sugar dropping. It was an arduous process, with frustrating setbacks and a new diagnosis we will keep for a while. But he did it. At our endocrine appointment yesterday, we decided it’s time to wean off the medication that is supposedly helping to balance his insulin and glucose.
We knew that we were going to ask the question yesterday but it is still a bit strange to think we can start this process. If we make it through, we will be down to one medication (for his thyroid) which we will be one until at least age two. We have been at a barely palliative dose of the insulin medication for months now and endocrine thinks his system does not need it. The way to find out: reduce the dose by half for two weeks, testing his blood sugar twice a day. If he makes it those two weeks without dropping his blood sugar, we go two more weeks with no medicine testing his blood sugar twice a day. If he makes it those two weeks, we are home free (theoretically) and just have to test if his behavior changes. So, for those of you with the wherewithal, cross your fingers for a while that we make it through.
Next stop, pediatrician at the start of the new year. After that we could have a few months of normalcy without doctors appointments every week. Again, fingers crossed.
December 12, 2015Posted by on
Hello again. We have been on an upswing for the past few weeks, just trying to get through to the end of the year. We have had some ups and downs, but are diligently working to figure out how to address the remaining challenges that exist. One to cross of the list: eyes.
We met with the amazing pediatric ophthalmology team at the JHU Wilmer Eye Institute on Wednesday to address some concerns about focusing and overall ability to see. It is remarkable what they are able to do for a FIVE MONTH OLD BABY to assess eyesight, and to make repairs to eye structure at this point to eliminate future issues. The visit we long and arduous, but resulted in amazing news. His eyesight is great. There is no damage to his optic nerve. And the focusing issues we are having are most likely a result of his prematurity and he will grow out of them. High five BBA!
Follow up with endocrine next week and hope for some medication adjustments. Updates on that to follow.