- .@brittenpund’s favorite holiday is Christmas. You probably already know that if you are on our card list since the… twitter.com/i/web/status/1… 13 hours ago
- Birds traded Bundy but I see Kyle Brnovich is in the return. Multiple @ElonBaseball members in the farm system now… twitter.com/i/web/status/1… 2 days ago
- RT @ElonPhoenixClub: Join us tomorrow on #ElonGivingTuesday and help us support our student-athletes! bit.ly/34HRmMB #phoenixrisi… 4 days ago
- RT @Ravens: Day 1: a signed @Lj_era8 helmet❗️ RT to win and #ProBowlVote for Lamar❗️ Win-win 😄 https://t.co/9eoSGM7HUz 5 days ago
- Doing Christmas things. 🌲. @ TLV Tree Farm instagram.com/p/B5gD1pTloML/… 6 days ago
- Working on our 🥇 backstroke. @ Goldfish Swim School - Columbia instagram.com/p/B5YqR_VFODP/… 1 week ago
- Just casually strolling through Michael’s, waving a flag and yelling “Go Elon”! instagram.com/p/B5P8cK_lA44/… 1 week ago
- Way to comeback and close out the season with a W! Great win boys! twitter.com/ElonFootball/s… 1 week ago
- That’s what I’m talking about! Let’s go boys! twitter.com/ElonMBasketbal… 2 weeks ago
- Recovery aided by a sweet card from his Great Aunt and Uncle! Thanks to all our family and friends who have checked… twitter.com/i/web/status/1… 2 weeks ago
a collection of random thoughts and ideas from me, her, and sometimes us
BBA: four long weeks
December 16, 2015Posted by on
To get released from the NICU, BBA had to make it six hours without his blood sugar dropping. It was an arduous process, with frustrating setbacks and a new diagnosis we will keep for a while. But he did it. At our endocrine appointment yesterday, we decided it’s time to wean off the medication that is supposedly helping to balance his insulin and glucose.
We knew that we were going to ask the question yesterday but it is still a bit strange to think we can start this process. If we make it through, we will be down to one medication (for his thyroid) which we will be one until at least age two. We have been at a barely palliative dose of the insulin medication for months now and endocrine thinks his system does not need it. The way to find out: reduce the dose by half for two weeks, testing his blood sugar twice a day. If he makes it those two weeks without dropping his blood sugar, we go two more weeks with no medicine testing his blood sugar twice a day. If he makes it those two weeks, we are home free (theoretically) and just have to test if his behavior changes. So, for those of you with the wherewithal, cross your fingers for a while that we make it through.
Next stop, pediatrician at the start of the new year. After that we could have a few months of normalcy without doctors appointments every week. Again, fingers crossed.