- Seeming fitting. “Practice what you know, and it will help to make clear what now you do not know.” - Rembrandt 53 minutes ago
- Land of the free, because of the brave. Thank you for those who serve and those who made the ultimate sacrifice. instagram.com/p/CAnKSu_Dw7g/… 4 days ago
- Game was great. Also, there’s probably still a scuff mark on the foul pole in Yankee Stadium from McLouth’s HR. twitter.com/Orioles/status… 6 days ago
- Are we just going to implode Harbor Place now? Is there anything left on that now that Ripley’s is gone? #baltimore 1 week ago
- As Olaf says, “water has memory.” Well, so does #timehop. Incredible timing to have these great photos of Pap, Peg,… twitter.com/i/web/status/1… 1 week ago
- There was an awful lot of people at Target today. 🤔🙄 1 week ago
- I like to ride my bicycle. 3 kids, 3 bikes. Better get a bigger shed! Someone got his first bike yesterday and wi… twitter.com/i/web/status/1… 1 week ago
a collection of random thoughts and ideas from me, her, and sometimes us
BBA: four long weeks
December 16, 2015Posted by on
To get released from the NICU, BBA had to make it six hours without his blood sugar dropping. It was an arduous process, with frustrating setbacks and a new diagnosis we will keep for a while. But he did it. At our endocrine appointment yesterday, we decided it’s time to wean off the medication that is supposedly helping to balance his insulin and glucose.
We knew that we were going to ask the question yesterday but it is still a bit strange to think we can start this process. If we make it through, we will be down to one medication (for his thyroid) which we will be one until at least age two. We have been at a barely palliative dose of the insulin medication for months now and endocrine thinks his system does not need it. The way to find out: reduce the dose by half for two weeks, testing his blood sugar twice a day. If he makes it those two weeks without dropping his blood sugar, we go two more weeks with no medicine testing his blood sugar twice a day. If he makes it those two weeks, we are home free (theoretically) and just have to test if his behavior changes. So, for those of you with the wherewithal, cross your fingers for a while that we make it through.
Next stop, pediatrician at the start of the new year. After that we could have a few months of normalcy without doctors appointments every week. Again, fingers crossed.