- Have never really gotten into St. Patrick’s Day but I did buy green mint Oreos at the food store today 👍🏼. 21 hours ago
- Some little people were very excited to get mail! #postcards instagram.com/p/BvFsJfHlU5B/… 1 day ago
- Cruisin’ into the weekend! #powerwheels #jeep #friyay instagram.com/p/BvDI_boFZnF/… 2 days ago
- While struggling through reading Fox in Socks with the kids, my daughter politely reminds me that Dr. Seuss uses words that rhyme. #dadlife 1 week ago
- #Terps seniors throwing up threes at the end of the game to get in the record book on senior night. I’m not even mad. 🤣 1 week ago
- Back over the summer, someone quit their job and went out on their own. It was a monumental decision. Leaving a car… twitter.com/i/web/status/1… 1 week ago
- Happy Anniversary @brittenpund! 9 years later and you still make every day better. You make us all better, day afte… twitter.com/i/web/status/1… 1 week ago
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- Guess I’m Coach Zack now. #teeballseason instagram.com/p/BujomLvhdFg/… 2 weeks ago
- Great win by @elonmenshoops today! Future Phoenix really enjoyed it. #phoenixrising #caasports #familyouting @ SECU… twitter.com/i/web/status/1… 2 weeks ago
a collection of random thoughts and ideas from me, her, and sometimes us
BBA: four long weeks
December 16, 2015Posted by on
To get released from the NICU, BBA had to make it six hours without his blood sugar dropping. It was an arduous process, with frustrating setbacks and a new diagnosis we will keep for a while. But he did it. At our endocrine appointment yesterday, we decided it’s time to wean off the medication that is supposedly helping to balance his insulin and glucose.
We knew that we were going to ask the question yesterday but it is still a bit strange to think we can start this process. If we make it through, we will be down to one medication (for his thyroid) which we will be one until at least age two. We have been at a barely palliative dose of the insulin medication for months now and endocrine thinks his system does not need it. The way to find out: reduce the dose by half for two weeks, testing his blood sugar twice a day. If he makes it those two weeks without dropping his blood sugar, we go two more weeks with no medicine testing his blood sugar twice a day. If he makes it those two weeks, we are home free (theoretically) and just have to test if his behavior changes. So, for those of you with the wherewithal, cross your fingers for a while that we make it through.
Next stop, pediatrician at the start of the new year. After that we could have a few months of normalcy without doctors appointments every week. Again, fingers crossed.