- Who else seen da leprechaun? Say yeah! 3 hours ago
- Fizz ‘n surprise. #dinosaureggs instagram.com/p/BgZ3l3yBBNo/ 1 day ago
- Remember to clean off your car next time it snows. A chunk of ice crushed my car this time last year. https://t.co/62wuuFeLuH 2 days ago
- When @Orioles season tickets arrive. https://t.co/nMO28ux602 3 days ago
- I’m pretty sure I could eat an entire bag of #Fritos in one sitting. 3 days ago
- Happy #ElonDay. An early #tbt for a special day. As someone once told us, “the world needs Elon… instagram.com/p/BgSJehGBXEC/ 4 days ago
- RT @lindseygbaker: For every dollar given to the Phoenix Club today, Jeanne & Jerry will match it 1:1, up to $100,000. Make a gift of any s… 4 days ago
- Happy Tuesday. Or as some of us call it, #ElonDay! 4 days ago
a collection of random thoughts and ideas from me, her, and sometimes us
where have we been?
March 23, 2016Posted by on
well, we passed the first two weeks and then passed the second two weeks so by the middle of january, we were officially off the insulin medicine and have grown out of that diagnosis. we only have to test his blood sugar if we feel there is an issue.
well, what’s happened since then? follow ups at endocrine show steady levels and only needing to return in 6 months instead of every 3. we also had a trip to the neurologist to address concerns with his head circumference. he is in the 1st percentile for head size which is a concern for continued brain development and head growth. his soft spots are around a millimeter large (or small) but his plates haven’t fused so we are okay for now. we will return in 6 months for a follow up and possibly an MRI to determine any further intervention at that time. the neurologist referred us to a developmental therapist and to see the genetics team. tuesday, we saw the developmental and occupational therapist and have had BBA evaluated for where he could use some extra support. we’ve known that he could be falling behind and didn’t want to set him back. from talking to the team, most of his issues seem to stem from being too toned (without strength) and not being able to release his hands, arms, legs, etc. because they are too tight. in a few weeks, we will have a full plan and staff to work with him, all provided for free by the state.
then it’s to genetics. appointments have been set up in may and we will be, more than likely, getting some genetic testing to see if there is a condition that may link together his issues.
it’s been a windy road to get this far and we can see him making strides each day. now, it’s just important to get him the specialized help he needs to be back on track.
it’s hard not to enjoy the special quiet moments even more than before. either with BBA, BBB, or @littlepund who clearly runs the house nowadays.