- Have never really gotten into St. Patrick’s Day but I did buy green mint Oreos at the food store today 👍🏼. 21 hours ago
- Some little people were very excited to get mail! #postcards instagram.com/p/BvFsJfHlU5B/… 1 day ago
- Cruisin’ into the weekend! #powerwheels #jeep #friyay instagram.com/p/BvDI_boFZnF/… 2 days ago
- While struggling through reading Fox in Socks with the kids, my daughter politely reminds me that Dr. Seuss uses words that rhyme. #dadlife 1 week ago
- #Terps seniors throwing up threes at the end of the game to get in the record book on senior night. I’m not even mad. 🤣 1 week ago
- Back over the summer, someone quit their job and went out on their own. It was a monumental decision. Leaving a car… twitter.com/i/web/status/1… 1 week ago
- Happy Anniversary @brittenpund! 9 years later and you still make every day better. You make us all better, day afte… twitter.com/i/web/status/1… 1 week ago
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- Guess I’m Coach Zack now. #teeballseason instagram.com/p/BujomLvhdFg/… 2 weeks ago
- Great win by @elonmenshoops today! Future Phoenix really enjoyed it. #phoenixrising #caasports #familyouting @ SECU… twitter.com/i/web/status/1… 2 weeks ago
a collection of random thoughts and ideas from me, her, and sometimes us
where have we been?
March 23, 2016Posted by on
well, we passed the first two weeks and then passed the second two weeks so by the middle of january, we were officially off the insulin medicine and have grown out of that diagnosis. we only have to test his blood sugar if we feel there is an issue.
well, what’s happened since then? follow ups at endocrine show steady levels and only needing to return in 6 months instead of every 3. we also had a trip to the neurologist to address concerns with his head circumference. he is in the 1st percentile for head size which is a concern for continued brain development and head growth. his soft spots are around a millimeter large (or small) but his plates haven’t fused so we are okay for now. we will return in 6 months for a follow up and possibly an MRI to determine any further intervention at that time. the neurologist referred us to a developmental therapist and to see the genetics team. tuesday, we saw the developmental and occupational therapist and have had BBA evaluated for where he could use some extra support. we’ve known that he could be falling behind and didn’t want to set him back. from talking to the team, most of his issues seem to stem from being too toned (without strength) and not being able to release his hands, arms, legs, etc. because they are too tight. in a few weeks, we will have a full plan and staff to work with him, all provided for free by the state.
then it’s to genetics. appointments have been set up in may and we will be, more than likely, getting some genetic testing to see if there is a condition that may link together his issues.
it’s been a windy road to get this far and we can see him making strides each day. now, it’s just important to get him the specialized help he needs to be back on track.
it’s hard not to enjoy the special quiet moments even more than before. either with BBA, BBB, or @littlepund who clearly runs the house nowadays.