- Sitting in completely stopped traffic on 295N trying to get to the @Orioles game. Completely miserable. Might make it by the 3rd inning. 20 minutes ago
- When your father-in-law is a retired softball coach, you just sit back and enjoy the moment. #cbl #teeballszn… twitter.com/i/web/status/1… 2 days ago
- #fbf for dbh819’s birthday. 30 years of friendship and almost 20 with the other guys. Happy Birthday Daniel!… twitter.com/i/web/status/1… 5 days ago
- There’s a bunch of jokers doing the Ric Flair “woohoo” in CLE. 4+ hours of Indians v Orioles will drive a guy crazy. 5 days ago
- Did it rain in NY all day or is Yankees just a dump and they couldn’t make the field playable? 1 week ago
- Happy Mother’s Day! The stakes are high as a parent. There are a zillion things to do and fight through but we le… twitter.com/i/web/status/1… 1 week ago
- Another W in the books. #CoachZack #teeballszn #CBL @ Jeffers Hill Elementary instagram.com/p/BxXJlbPHpsi/… 1 week ago
- Cat lady aisle for 1! 🤣 twitter.com/ravenspc/statu… 1 week ago
- A little bilateral myringotomy with tympanostomy tubes procedure to get the day started. @ MedStar Montgomery Medic… twitter.com/i/web/status/1… 1 week ago
a collection of random thoughts and ideas from me, her, and sometimes us
where have we been?
March 23, 2016Posted by on
well, we passed the first two weeks and then passed the second two weeks so by the middle of january, we were officially off the insulin medicine and have grown out of that diagnosis. we only have to test his blood sugar if we feel there is an issue.
well, what’s happened since then? follow ups at endocrine show steady levels and only needing to return in 6 months instead of every 3. we also had a trip to the neurologist to address concerns with his head circumference. he is in the 1st percentile for head size which is a concern for continued brain development and head growth. his soft spots are around a millimeter large (or small) but his plates haven’t fused so we are okay for now. we will return in 6 months for a follow up and possibly an MRI to determine any further intervention at that time. the neurologist referred us to a developmental therapist and to see the genetics team. tuesday, we saw the developmental and occupational therapist and have had BBA evaluated for where he could use some extra support. we’ve known that he could be falling behind and didn’t want to set him back. from talking to the team, most of his issues seem to stem from being too toned (without strength) and not being able to release his hands, arms, legs, etc. because they are too tight. in a few weeks, we will have a full plan and staff to work with him, all provided for free by the state.
then it’s to genetics. appointments have been set up in may and we will be, more than likely, getting some genetic testing to see if there is a condition that may link together his issues.
it’s been a windy road to get this far and we can see him making strides each day. now, it’s just important to get him the specialized help he needs to be back on track.
it’s hard not to enjoy the special quiet moments even more than before. either with BBA, BBB, or @littlepund who clearly runs the house nowadays.