- The swing plays but that Adley stache definitely does not play. 🤣#Birdland 5 days ago
- Between the is Lamar at mini camp talk and the Angelos statement this morning, local sports radio sounds like nails on the chalkboard. 2 weeks ago
- Just posted a photo instagram.com/p/CepPcwDr7I3/… 2 weeks ago
- Adley with mimic of the umpire’s call is the best part. twitter.com/Orioles/status… 3 weeks ago
- With Grayson Rodriguez likely going to the IL, is it going to be DL Hall call up time? #birdland 3 weeks ago
- Happy Memorial Day! Thank you to all those who have served and scarified their lives for us! #mdw #usa #chalkart instagram.com/p/CeMDKPhLN1X/… 4 weeks ago
- Bats were hot tonight. Look out! #Birdland 1 month ago
a collection of random thoughts and ideas from me, her, and sometimes us
Category Archives: life
July 24, 2015Posted by on
BBA: He has been off glucose for five hours and blood sugar is remaining steady. He continues to eat well. Waiting on results of an abdominal ultrasound. Bilirubin dropped today on its own, negating the need for the medication they were going to start (yay).
BBB: BBB got his first bath tonight. His hair is fuzzy again, reigniting the competition with BBA on who has better faux hawk potential.
July 24, 2015Posted by on
They are getting ready to turn off all IV fluids. Please keep your fingers crossed for an uneventful afternoon. More later.
July 23, 2015Posted by on
Blood sugar holding steady. Increased his calorie intake. Starting him on a medicine to address his bilirubin. Blood thinner is working well.
Lots of tests scheduled for tomorrow morning.
July 22, 2015Posted by on
Made it for rounds today. Medical team was very optimistic about his progress and decided to challenge him today, giving him more food per feed and dropping his glucose significantly. And he met the challenge like a champ! May be weaned entirely off of the glucose by tomorrow afternoon.
Several tests scheduled for Friday morning to assess bilirubin concerns and decide on a final plan.
July 21, 2015Posted by on
Apologies for no update yesterday. It was a good day though. BBA was drinking bottles like a champ and was awake and alert when we were both there for visits. BBB attended his first Monday night dinner and was so enthusiastic about the outing he slept through the whole thing.
Today, BBA was taken off all nutritional supplements (a good thing) and his blood sugar was holding steady while eating 60mL every three hours! Still on glucose and blood thinner. Antibiotic ends tomorrow.
Now the waiting game begins … as long as he has a consistent blood sugar reading and eats by bottle every three hours, they will wean him off the remaining glucose. Once off, he will need to maintain his blood sugar and eat well for several days for them to consider transfer/release. He can come home on the blood thinner if everything else is ok. Fingers crossed his system is up to snuff.
July 19, 2015Posted by on
Slept well overnight and looks great. Housed a bottle while I was with him and was an excellent snuggler. Looked less yellow, but his bilirubin had yet to be retested for the day.
Also a very proud moment for the situation we are in…I got pooped on!!!! His belly was down five centimeters from its high last week. It seems like the antibiotic and his system overall are working well.
July 18, 2015Posted by on
Belly rigidity seems to be improving and less concerning for the team. Feeding tube was back in but only to be used if he wouldn’t feed out of a bottle. He was starting with 10 ml’s to see what’s happening late this afternoon. This was the first test to see if it’s better and resolving. Will still get the baby gatorade (vitamin and glucose drip) for now. Bilirubin continues to be on the higher side and might be the next and hopefully final hurdle.
July 17, 2015Posted by on
Today was a good day. Things are looking up again. His belly has softened and now we are simply waiting for him to start passing air and stool on his own again. Once he does, which the doctors think may happen today, they can consider starting him back on food, maybe as soon as tomorrow. All other reports are good and we got lots of snuggles in.
July 17, 2015Posted by on
He was sleeping well yesterday and being weaned off his glucose and insulin medications entirely. All initial issues have now been resolved, for the time being. He had two x-rays of his belly. Results will be back today (Friday). Depending on those results, he could be back on food today or could be off food for a week. Will update later this morning.
July 16, 2015Posted by on
It was a good day…glucose IV was turned down again and he is remaining stable. All other stats are normal. He was eating well from a bottle. His blood thinner finally reached therapeutic level, so they removed the old PICC line. Overall, progress.
Last night we were notified that there was concern for belly rigidity and they were discontinuing all food (bottle and tube feeding) until they could determine the cause. They drew blood and started him on an antibiotic until they had more answers (today).